PROGNOSIS works closely with the European bronchiectasis registry EMBARC (The European Multicentre Bronchiectasis Audit and Research Collaboration, www.bronchiectasis.eu), which is sponsored by the European Respiratory Society (ERS) as a Clinical Research Collaboration. The data from PROGNOSIS represent Germany within the European bronchiectasis registry EMBARC.
In the research network BREATH (Biomedical Research in Endstage and Obstructive Lung Disease Hannover), site of the German Center for Lung Research (DZL), the issue of non-CF bronchiectasis (NCFB) also has high priority. Together with the DZL partner CAPNETZ FOUNDATION, BREATH supports the German bronchiectasis registry PROGNOSIS with its public relations work, data management and cooperation with the participating centers.
Of particular importance for PROGNOSIS is the intensive cooperation with the non-CF-affected patients, their patient organizations (Deutsche Atemwegsliga e.V., Deutsche Patientenliga Atemwegserkrankungen e.V.) and a patient group advising the registry. PROGNOSIS offers affected patients a contact point providing relevant information and support in organizing themselves in order to be able to favorably influence the course of the disease.
We would like to thank our partners for their support: